Comments 6 Aside

OK, Apologies first methinks

Yes, I am a dreadful blogger, I haven’t blogged about Bertie since November last year! Scandalous! What a bad bad blogger I am.

Lets do a catch up.

We had our first Christmas and our first Easter,which involved lots of presents and fuss over Bertie, and Mummy eating his chocolate Easter Eggs as he’s far too young to indulge! You gotta help the little ones.

We have had three episodes of bronchiolitis, two quite serious, one ride in an ambulance (a first for me) and a week long stay in hospital getting Bertie stabilised again. That coupled with over-exposure to the quite dreadful cafeteria food and the poor sick people of Dorset being subjected to mummy sans makeup, it was a bad January and February all round.

We have had a bad rash develop over Bertie’s face, and as yet do not know what the cause is, although its looking likely to be something he’s touched not what he’s eaten.

We have cut our first two front teeth and boy have we known about that!

We have had appointments to see the ENT Consultant a few times now since November regarding Bertie’s vocal chords, and the verdict is that the left chord has remained paralysed. However the right chord is overcompensating very nicely, and whilst she thinks he may have quite a husky voice,  which none of us are overly concerned about as I think it could be a winner with the girlies when he’s like 30 and starts to date nice girls only, we do need to stay vigilant regarding chest infections, as the vocal chord lays open it can mean easier access for food and liquid to fly down into his lungs and cause problems, so we are on a heightened state of alert for any sort of chest infections. ( Man down as I write, lets hope its not a bad bout)

Bertie does struggle to drink water as its thinner than milk and he chokes and splutters lots, so following a visit to the dietician she has prescribed us something to add to the milk to thicken it so he can drink it without struggling.

Bertie has been somewhat slower than most hitting his milestones, but then we must remember he was three months premature, I’m not expecting him to sit his GCSE’S right now.

We had a six month check up with Bertie’s consultant some time ago, and they were concerned that Bertie wasnt using his left hand and that his legs were quite floppy. He hadn’t rolled over and he hated being on his tummy. They mentioned Cerebral palsy, and in truth it hit me for six. I don’t know why really, given everything we have gone through, but I soon got over myself and remembered the deal I made with God in the early hours when I was lying in that hospital bed, praying I didn’t lose my babies. I just wanted them to live and I stand by that, I never got specific on what career they were to forge themselves or anything like that, because I didn’t care, i just wanted them to be alive, and I would take care of them and love them regardless.

So we now see a physiotherapist every three weeks who monitors Bertie, and gives us exercises homework.

Bertie’s Daddy think he’s putting it all on,and Im slightly inclined to agree, as rumour has it there is a rogue gene on my side of the family that has a tendency for the old theatricals, so I think a little bit of the amateur dramatics are at play here, with Bertie giving a rather rousing performance to his audience just for kicks.

He is rolling over now, he’s happy on his tummy although not crawling (far too much hard work darling) and he is able to sit up but not quite unaided yet. Oh, and he’s using that left hand they were concerned about, ALOT!

And so, we are nearly at his first birthday. I don’t quite know where the last year has gone, at times I don’t know how we have got through it.

I feel nervous as although its the happiest day of my life, its also one of the saddest as my darling daughter is not here to celebrate with us as a family, like it should be.

Rest assured she is always remembered, I am having a birthday cake made out of flowers for her grave, and a few girly pink balloons as its her day too after all.

Her headstone is ready, it has been for a while. But every time I sit down to write her epitaph, her final words to mark her footprint in this world, I get rather upset and just can’t seem to finish it. Maybe its a closure thing…

So, with a big smile I will carry on.

Here’s to the next twelve months and all they bring

Bertie, I love you so very much and I am so proud of you. You are quite simply my world.

Love Olive xx

 

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Bert and Olive – Keeping the bugs at bay

Comments 14 Standard

As Bertie’s P.A, I can tell you its been a hectic few weeks managing his diary. My little exec is in demand from every corner of the National Health Service.

Bertie was penciled in to visit the ENT specialist. Ever since he had his heart operation to close his PDA when he was a few weeks old,  his cry has been MIA. At best it is a rasping breathy whisper-cry, it really does break my heart.  I used to lay awake at night worrying that the SCBU and Neonatal nurses couldn’t hear my miracle man, therefore they wouldn’t know when he was upset to comfort him. I think I developed quite a psychosis about it. I would ring them randomly in the early hours to check he was ok, and to see how he had been in the two hours since I had left him. I’m sure they cursed me behind my back.

The specialist confirmed that his left vocal chord had been damaged during the operation, and we are to wait a few months to see if it can heal itself, or if they need to act on it. An operation might also be required to see if his voice box was damaged by the ventilator. It can affect breathing and eating as well which hadn’t even crossed my grey matter, so I am super happy that we are in the system and being monitored.

He also visited the dietician, who was happy with his weight gain, he’s now a whopping 10lb 3oz! We discussed weaning but it has been agreed to leave it for a few months, as we use his corrected age for this particular milestone, and not his chronological age. Its a minefield for a premature baby with what to expect and when, and I failed maths GCSE miserably so my face resembles a smacked bottom when they start discussing subtracting this age from that…. I just nod with conviction to ensure they think I am a genius.

Today we had Bertie’s RSV jab.  RSV is a virus much like the common cold, except in babies whose health has been compromised a weeny bit in the early months, it can turn into a serious lung infection leading to pneumonia and bronchiolitis.  As Bertie has inherited my immune system, I can guarantee he would catch every single germ that would pass under his nose and may as well take to his moses basket for the winter and hibernate until Spring arrives if we couldn’t get this immunisation.

Now I thought I was going to have to fight for this jab, as its not given out willy-nilly, its an exorbitant price and you have to hit certain criteria to be entitled to it. Luckily no dirty tricks from me required because Bertie has Chronic lung disease and because of his prematurity he is entitled to it. Although this won’t stop colds, it should ensure they dont develop into something more sinister that could hospitalise him.

I am also booked in for the flu jab this winter, again another avenue of preventive care to halt these germs from crossing our threshold.  Ive been lucky enough to get mine free of charge as I still have on- going high blood pressure from Pre-Eclampsia, (maybe not so lucky, BIG BOO to the Pre Eclampsia)  however I have booked in the other half to have his jab at the local Boots pharmacy for only £12.99. Lord thats peanuts to pay for keeping the lurgy at bay for six months.

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Love Olive x

 

Bert and Olive – Double Take

Comments 12 Standard

‘Tis fair to say that I am turning heads at the moment. Unfortunately not for my devastatingly good looks but because my baby is on oxygen and where-ever we go, so too does the O2 canister.

I have to say I was a little daunted by the prospect of attempting any kind of normal life knowing I had this canister in tow, however after a few weeks its not proving too bad, the key is in the planning.

We were given four canisters, two very large ones for home use, and two portable ones which are in a back pack so at best it looks as if I am about to get my crampons on and scale a Mountain.

Its not light, so ideally I use it with the pram and stow the canister under the pram, however if I am just “popping in” somewhere, a concept that is ridiculous to even suggest with any baby, least of all one with oxygen then the three of us go in together. Without doubt it has saved me money, as I have so much to carry before I even enter the shop that I really cannot browse and therefore just grab and go.

What I have experienced on my travels so far is that lots of people do like to gaze, sometimes wide eyed whether they realise they are doing it or not. I imagine its out of curiosity more than anything, most people seem to guess Bertie’s a premie baby and will talk about their experiences, others ask how old he is, but the worst offenders seem to be the older generation (not all) who have come bouncing over to me cooing as they have spotted the pram, and are ready to pounce on the little bundle inside and then when they take a peek and see Bertie, they seem to freeze, recoil and act a little strange. Anyone would think I had Bubbles the chimpanzee in there.

Rest assured ladies, you do not offend me, nor Bertie, I am sure its not something you see every day, same as that dreadful blue rinse you have upon your head, which has me running for the hills, so me thinks we are even.

One lady in a well known supermarket where every little helps even came up to me, and suggested that I should carry some sort of flag so people could see I was carrying oxygen and try not to ram me in the aisles with their trolley as she so nearly had done.

So the lessons learnt so far is that having a baby on oxygen not only saves you money, it minimises trolley rage, but best to swerve golden oldies due to awkward pauses.

I am looking like an overly worked pack horse at the moment, so one thing I have invested in, is a jolly good baby bag. I have so much to carry, that I cannot balance that delightful little Mulberry off my shoulder any longer.

Yes I am aware I have to be practical, but you can be stylish with it too.

Enter Storksak. The upper echelons of the baby bag world. They have a plethora of scrumptious bags to choose from, I spent hours comparing the masses, and hedged my bets on the Storksak Elizabeth in tan, which I literally drool over every time I am packing for a trip.Enough space for Bertie’s bits, and mine too. Heck if the O2 canister wanted me to carry something for him I would oblige, theres oodles of space. Its a luxurious soft leather and comes with a changing mat, insulated bottle holder, removable vanity case ( nice touch, they knew I was coming) and wipe clean lining throughout, which trust me is needed if you are clumsy butterfingers like me.

This bag is a dream purchase and one of my staple buys in mumsy world and if my other half asks you, it cost half the price.

Storksak Elizabeth £198.00 sold in John Lewis – Free standard delivery for all orders over £50

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Little Bertie update: 8lb 3 ounces at 4 months old and doing well.